Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

User avatar
WriteItDown
Posts: 155
Joined: Mon Mar 13, 2017 8:49 pm
Location: Colorado
Occupation: Veterinary ophthalmologist

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#76

Post by WriteItDown »

Hi SueDB

I am sorry but I cannot contribute to your fund but I am a bit strapped as well. I was just about to return to work when bango my cancer returned again. It was very discouraging as I was told that I was "cured".

Personally I tried MJ as a young person and did not like it at all. But, I got a perscription when I got cancer and tried it again, no dice. I agree that it is a shame that it is politicized as everyone should have a choice about whether or not to use it.

I am thinking of you and your wife.
Bloom where you're planted 🌷

User avatar
Sterngard Friegen
Posts: 46668
Joined: Wed Aug 05, 2009 12:32 am
Location: Over the drawbridge

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#77

Post by Sterngard Friegen »

SueDB wrote:
NMgirl wrote:
SueDB wrote:ASueDBSrChemo.jpg
That's a great look, actually. Hair is overrated.

I loved the picture of three generations of handsome SueDB's. Made my evening.

Thanks for the cheer!
Funny thing though - it wasn't the top of my head where I started to lose and so far have lost the most hair...... I'll leave to your imagination.
:swoon:

User avatar
Addie
Posts: 40311
Joined: Mon Jun 15, 2009 6:22 am
Location: downstairs

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#78

Post by Addie »

The first of the month is nearly here. :blink:

Love ya, Sue :bighug:
SueDB wrote:OK - here is where the moneys have been sent for the Transplant and medical/non-medical support
Main Fund HQ out of:
Granny Trisha Kidney Fund #4156
Washington Employees Credit Union
575 Trosper Rd SW Stte 104
Tumwater, WA 98512

GoFundMe

For those that don't like any of the previous we have the ever popular

Paypal.me

https://paypal.me/grannytrishakidney Linked to Patricia Proffitt

https://paypal.me/grannytrishaskidney Linked to Bill Proffitt
"The very least you can do in your life is to figure out what you hope for." - Barbara Kingsolver

User avatar
SueDB
Posts: 27756
Joined: Thu Sep 30, 2010 2:02 pm
Location: RIP, my friend. - Foggy

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#79

Post by SueDB »

Just checking in. I haven 't posted/toasted/roasted anything in a while. I just haven't felt too good. Y'all are wonderful folks with your generosity and patience while things work out. :o :think:

My Mrs - Ms. Trisha SueDB is hanging in there. The doctors have almost approved our donor (Trisha's daughter Katie)kidney donation except for one small problem. For some reason the psychiatry service has been holding things up. They are worried that my daughter is doing the donation for the wrong reason - my cancer. We are trying to get them to discuss it with us as we have worked on this for almost a years now with Katie as a donor and me only discovering the cancer in March. I am kind of at wit's end as we don't feel we are getting the whole story out of the psych folks.

As far as I am concerned, I'm having a tough time of it frankly. Whenever I get dosed up with the chemo to get something accomplished, I end up having to go back into the hospital or end up with a 4 or 5 day course of therapy for dehydration and low red and white blood cell counts. They dosed me up again this morning after I have a really bad night. I am praying that things will work out and trying to keep a good attitude. I spend the next 3 days getting dosed (hydration/red/white blood cell build up) to face the radiation (Gamma Knife in Tacoma) next week. They are going to use a Gamma ray dosing device on the small tumor in my brain. There isn't enough room to dig it out, nor enough time let any of the chemo work with any practical guarantees. With the typical medical sense of humor, they are going to "burn it out". Then after than an MRI/CAT/whatever to see if it was nuked. I am fortunate that my son has the day off is is truly happy to drive me up to Tacoma (about 140 miles RT) for the procedure.

As you can tell, I'm a bit depressed, but my family and friends are all behind me and all working along with my Fogbow Friends to render a positive resolution. I guess I am just pissed off that I could very well die from all these chemicals and procedures. I can't get much out of the doctors as far as a prognosis, so I'm driving without my GPS so to speak. My wonderful wife has worked real hard to make sure I have all the tools that I need, hospital bed, hospital equipment, extra staff (1 or 2 folks from an outside staffing agency funded through someone...., wheel chair, walker, wheel chair ramp for the house, some yard maintenance besides my kids, and my wife - God bless her&each and every one of them.

We haven't gotten to the point where dialysis is required, but were getting close. I'm hoping that something breaks off and goes good for us before that point as I don't know how we are going to split the time and effort to fix both of us at the same time. Dialysis is needed when the GFR measurement goes to 8/below. Her GFR fluctuates around 9/10 so far. There just isn't any treatment available that will slow or stop the deterioration. All I can do is try to feed her foods/things/medicine that won't harm her.

I'll check back in later when I am feeling better/more/better info.

Until then bless y'all and I hope everyone has a nice start to the summer season. :dance: :dance: :dance: :dance:
“If You're Not In The Obit, Eat Breakfast”

Remember, Orly NEVAH disappoints!

User avatar
NMgirl
Posts: 4562
Joined: Wed Apr 13, 2016 12:02 am

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#80

Post by NMgirl »

SueDB wrote:
Hi SueDB.

Thanks for the update and the description of the horrendous ordeal you are experiencing. We've all been worrying about you, thinking about you, fervently hoping for the best for you and Mrs. SueDB.

Plus, also, too, TFB just ain't the same without your snarky presence. Miss you. Hang in there!

So many :bighug:

User avatar
RVInit
Posts: 8937
Joined: Sat Mar 05, 2016 4:31 pm

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#81

Post by RVInit »

I am so glad you checked in. :bighug:
"I know that human being and fish can coexist peacefully"
--- George W Bush

ImageImage

User avatar
RoadScholar
Posts: 8569
Joined: Wed Jan 26, 2011 10:25 am
Location: Baltimore
Occupation: Historic Restoration Woodworker
Contact:

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#82

Post by RoadScholar »

Yeah man. We're beside you in spirit. :bighug:
The bitterest truth is healthier than the sweetest lie.
X3

User avatar
Tiredretiredlawyer
Posts: 9933
Joined: Tue May 10, 2016 2:56 pm
Location: Animal Planet
Occupation: Permanent probationary slave to 1 dog, 1 cat, and 1 horse, 4 granddogs, and one grandcat.

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#83

Post by Tiredretiredlawyer »

So glad you posted. We are with you and granny Trish in spirit and thoughts. It sounds like you are doing the best you can in a tough situation. :thumbs: :bighug:
A 19th Amendment Centennial Moment:
The 19th Amendment was first introduced to Congress in 1878, yet it was not approved by Congress until 1919 – 41 years later.
- https://legaldictionary.net/19th-amendment/

User avatar
Sterngard Friegen
Posts: 46668
Joined: Wed Aug 05, 2009 12:32 am
Location: Over the drawbridge

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#84

Post by Sterngard Friegen »

:bighug:

User avatar
Foggy
Posts: 30365
Joined: Tue Jan 20, 2009 12:00 pm
Location: District Court of Bun-Dogs
Occupation: Ugly bag of mostly water

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#85

Post by Foggy »

Yeah, what they said. Your job is to beat this thing.

PLEASE. :pray:
For more information, read it again.

(Fogbow on PayPal)

User avatar
Slarti the White
Posts: 7051
Joined: Mon Aug 10, 2009 2:52 pm

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#86

Post by Slarti the White »

SueDB wrote:Dialysis is needed when the GFR measurement goes to 8/below. Her GFR fluctuates around 9/10 so far.
For those that don't know it, "GFR" stands for glomerular filtration rate, the amount of filtrate (all the small stuff in your blood -- basically plasma) that is going from the glomerulus to the nephron. Harold Layton, my advisor at Duke, used to say that your kidney throws the baby out with the bath water then takes back the baby. I did my thesis research on the coupling of oscillations arising from tubuloglomerular feedback and seeing the TLA GFR brings back memories.

Hang in there Sue! I'm with Foggy, your job is to get through this. When I get a second, I'll explain to you how I intend to give you a hand in beating this thing if you can hold on long enough (or if Phoogie can get the consardit TARDIS working... never should have let :sterngard: go for a joyride).

I gave a talk about it to a software conference on May 22nd titled "Creating Custom Cancer Care with Coding". The technology to have your back is coming -- if not from me, from someone else -- you've just got to hold on until it gets here!
:thumbs: :bighug:
"Strategy without tactics is the slowest route to victory. Tactics without strategy is the noise before defeat."
---Sun Tzu (quoting Thomas Jefferson)
nam-myoho-renge-kyo---Thomas Jefferson (quoting Slartibartfast)

User avatar
SueDB
Posts: 27756
Joined: Thu Sep 30, 2010 2:02 pm
Location: RIP, my friend. - Foggy

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#87

Post by SueDB »

MRI & Gamma Knife procedure Friday for the cancer demonstrated a larger tumor that tDoc thought. No to worry, they burned it out with all the "Extra" Cobalt 60 generated gamma rays we brought a long ( they were behind the mini cans Coke). I got a headache out of the process but I''ll trade that for for moment. The headache has been slowly going away. It took about 8 hours for the whole process -Preadmission, Admission, clinic admission, MRI, then to clinic for an hour and a half of meticulous planing and setting up the cage...... geez then another 90 minutes for the actual procedure inside the "Tube". If you didn't have claustrophobia then, you surely would now. I was lucky in order to have morphine and atavar, authorized already. I was pretty much asleep for the up time.. Now it's moving on to regular chemotherapy with the carboplatin again on Wednesday.

Pictures.....
You do not have the required permissions to view the files attached to this post.
“If You're Not In The Obit, Eat Breakfast”

Remember, Orly NEVAH disappoints!

User avatar
Tiredretiredlawyer
Posts: 9933
Joined: Tue May 10, 2016 2:56 pm
Location: Animal Planet
Occupation: Permanent probationary slave to 1 dog, 1 cat, and 1 horse, 4 granddogs, and one grandcat.

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#88

Post by Tiredretiredlawyer »

It is so good to hear from you!! I love your new headpiece. Turning into quite the fashionisto aren't you?
A 19th Amendment Centennial Moment:
The 19th Amendment was first introduced to Congress in 1878, yet it was not approved by Congress until 1919 – 41 years later.
- https://legaldictionary.net/19th-amendment/

User avatar
NMgirl
Posts: 4562
Joined: Wed Apr 13, 2016 12:02 am

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#89

Post by NMgirl »

Handsome as ever, Mr. SueDB.

As always, it's thoughtful of you to check in with your TFB buddies and let us know how you are getting along. Miss you bigly, that's for sure. :bighug: :bighug: :bighug:

User avatar
RVInit
Posts: 8937
Joined: Sat Mar 05, 2016 4:31 pm

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#90

Post by RVInit »

You have a beautiful smile and that is quite some gear on your head! Thanks for the update. Sending my best thoughts and wishes your way. And big :grouphug:
"I know that human being and fish can coexist peacefully"
--- George W Bush

ImageImage

User avatar
Estiveo
Posts: 8651
Joined: Tue Oct 20, 2009 7:31 pm
Location: Trouble's Howse

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#91

Post by Estiveo »

Nice hat, buddy. :thumbs:
Image Image Image Image Image

User avatar
Notorial Dissent
Posts: 13790
Joined: Thu Oct 17, 2013 8:21 pm

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#92

Post by Notorial Dissent »

That sounds like definite progress, so glad. :bighug: :bighug:
The fact that you sincerely and wholeheartedly believe that the “Law of Gravity” is unconstitutional and a violation of your sovereign rights, does not absolve you of adherence to it.

Mr. Gneiss
Posts: 1842
Joined: Sat Jan 01, 2011 12:37 am

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#93

Post by Mr. Gneiss »

Posted with the hope that SueDB will crack a grin! :-D

GNEISS HAT
Gneiss_Hat.jpg
ASS HAT
red1.jpg

Edit: Edit for :sterngard:
You do not have the required permissions to view the files attached to this post.

User avatar
Addie
Posts: 40311
Joined: Mon Jun 15, 2009 6:22 am
Location: downstairs

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#94

Post by Addie »

Looking good! :-D
"The very least you can do in your life is to figure out what you hope for." - Barbara Kingsolver

User avatar
Sterngard Friegen
Posts: 46668
Joined: Wed Aug 05, 2009 12:32 am
Location: Over the drawbridge

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#95

Post by Sterngard Friegen »

:bighug: sue da bastardz!

Mr. Gneiss - it's

GNEISS HAT

ASS HAT

User avatar
Suranis
Posts: 17914
Joined: Sat Nov 20, 2010 7:04 am

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#96

Post by Suranis »

Star Treks Borg are really trading up in their victims these days.

Or maybe its Dr Who's Cybermen.
The difference between the Middle Ages, and the Age of the Internet, is that in the Middle Ages no-one thought the Earth was flat.

User avatar
SueDB
Posts: 27756
Joined: Thu Sep 30, 2010 2:02 pm
Location: RIP, my friend. - Foggy

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#97

Post by SueDB »

I wonder if I could join one of those suits where our/your out years after you win. The one where They did mentioned that there would be the a possibillity of "SOFT Cancer in the early teen years.

Crohn's disease patients are known to have a higher risk of lymphoma irrespective of infliximab use; in the registry, the standardized incidence ratio (SIR) for lymphoma was 2.25 (95% CI 1.03 to 4.27). ... On the other hand, the SIR for breast cancer in registry patients was 0.55 (95% CI 0.27 to 0.98).Nov 2, 2011
ACG: No Cancer Risk With Biologic in Crohn's | Medpage Today
www.medpagetoday.com/meetingcoverage/acg/29405

It didn't seem to me that any of the "Hard Cancers" such as lung cancer etc. are showing up.

From our legal eagles/beagles.... Just how such a suit come together? Is it worthwild

And any chances of success???? on the legal front?

Or Have i been watching too many Ronnie Deuctch (fp) commercials$$$$$$$/ or John Ravolta/ :?: :?: :?: :?:



.
“If You're Not In The Obit, Eat Breakfast”

Remember, Orly NEVAH disappoints!

User avatar
Foggy
Posts: 30365
Joined: Tue Jan 20, 2009 12:00 pm
Location: District Court of Bun-Dogs
Occupation: Ugly bag of mostly water

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#98

Post by Foggy »

Everybody else likes the hat ...


... I'm a big fan of the muu-muu. Classy. :thumbs: :clap: :mrgreen:
For more information, read it again.

(Fogbow on PayPal)

User avatar
June bug
Posts: 6243
Joined: Wed Jul 01, 2009 3:29 pm
Location: Northern San Diego County

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#99

Post by June bug »

Quite the fashion forward guy, aren't you Sue? :bighug: :bighug:

Mr. Gneiss
Posts: 1842
Joined: Sat Jan 01, 2011 12:37 am

Re: Mr. SueDB & Ms SueDB Stage 5 Chronic Kidney Disease and Small Cell Carcinoma in no9

#100

Post by Mr. Gneiss »

Sterngard Friegen wrote::bighug: sue da bastardz!

Mr. Gneiss - it's

GNEISS HAT

ASS HAT
Okay. Done.

Post Reply

Return to “Science & Technology”